Category: CCSVI

One step closer to “Liberation” treatment

On Monday, March 21st, I finally received the results of my MRV/MRA scans (not sure what the acronyms mean, just know that’s what the script  for the jugular/azygos vein scans said). The results show that I have mild narrowing in my left jugular. There may be more, but that’s what the doctor’s assistant told me. Based on those results, the doctor has decided to proceed with the treatment. I’m scheduled for April 12th. I’m just waiting for my insurance company to approve the procedure.

Right now, I’m glad that something was found. Does mild narrowing equate to mild disability? Possibly. I’d like to think so. My left side is primarily affected, so there seems to be a correlation from that perspective. My neurologist always said (facetiously I always thought) that I had “mild MS” because I only have one area of damage in my brain. Maybe he was right.

Anyway, I’ll be on edge until the 12th. It’s like waiting for Christmas to arrive. You know it’s going to be exciting, but you don’t know what kind of gift you’re going to get. Hopefully it’s not a lump of coal. 🙂

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CCSVI Evaluation Scheduled

Tomorrow, March 7, 2011, I will be having the two tests to evaluate whether I have CCSVI. I’m excited, scared, hopeful, fearful all at once.

I guess this may be the first time I’ve ever wanted a medical test to find something wrong. In this case, however, finding something wrong means there’s a hope that it can be “fixed” and there’s a chance I can get something close to a normal life back. Hence the name, “liberation” treatment.

The fearful part, of course, is what if they don’t find any blockages? What if this is all just some crazy neurological issue with no known cause, no known cure, the same way that it has been viewed all these years? Will I be devastated? That’s my fear, that I’ll be so devastated that I’ll sink into depression, something I’ve never experienced since being diagnosed 4-1/2 years ago.

Or maybe I’m better than that. Let’s get through the test first. I’ll get back to you on the rest.

My continued MS path – CCSVI

Without going into the full details of what Chronic Cerebro Spinal Venous Insufficiency (CCSVI) is, I’ll just start by saying that on February 11, 2011, I visited Dr. Sperling’s office in NYC to start down the path towards the “Liberation Therapy”. It really is nothing more than an angioplasty, which has been performed on people for 40 years, but it is now being used on MS patients with much success. Within two months, I hope to report my results after the procedure. Stay tuned!!

Feb. 17, 2011: Just received my script for required blood work to ensure kidneys are ok. Insurance approved the MVA procedure, which is the test to see if there is vein constriction in the neck and chest. Blood work will be done on Monday. The actual test will be scheduled within 1-2 weeks. Getting excited!